Wednesday, February 4, 2009

February 4th

It's hard to believe this all started 3 weeks ago, in some ways it feels like yesterday and in others like a year ago. We really don't know much more than we did when we went to our family Doctor on the 15th. Thus when they say they "practice" medicine, they really mean they are practicing on you!
What we do know; Jami is sick, she has had one heck of a viral infection in her brain and brain stem that seems to have began to turn, but, just when we feel things might be really moving along, the virus likes to show it's sense of humor and revert back to one of its many tricks just to remind us it is still here. There has been significant nerve damage, the whole extent we do not know, but, we are optimistic for a full recovery.
Jami has been a trooper and really re-written the definition of endurance. One of the nurses who has had limited interaction with Jami, but has seen her on this floor since she came in and has helped a number of times during her seizures and contractions, today was here to help during one of her massive contraction attacks. He knelt down and talked to her, he has been nursing on this floor, and in the renal unit (this floor is one step down from ICU and CCU) for years. He told Jami that she was by far the toughest person he had ever met, to go through such pain, frustrations, length of stay, therapy, regression, tests, tests and more tests and always with a smile, always happy and grateful. It was encouraging for her, this guy has seen it all. He was very serious and is not the type to fluff somebody up, he knelt down and was talking to her, wiping tears (his and hers) calming fears and offering encouragement as well as admiration for her endurance. The other nurses were shocked to see this side of him. She is the epitome of strength through all of this and has been a true example to me and others.
Her time here at the hospital is coming to an end, we are now trying to find a rehabilitation facility in Utah county that fits her needs, so if anyone has advice we are all ears!
Please continue to keep Jami in your thoughts and prayers, she is still very sick and the Doctors are still trying to get the right cocktail of medication to keep her from having seizures, suppress the viral infection and stop her headache so she can be stable enough to start real therapy and look to coming home.
Thank you for all of your love and support, Jami has found true peace by connecting with friends old and new, family and strangers through all of this.

3 comments:

Janice Phillips said...

Greg, you are a rock. I'd send you a Costco-sized towel if I could. Sending lots of love and prayer to you both tonight. XXOO

Ash said...

Great to hear that Jami is improving and ready to move on to rehab. Good luck and keep fighting! Sorry that you have had to learn the hard way about ambiguity and uncertainty in medicine. We have so much more to learn.

Danielle Christiansen said...

we are glad to hear tings are looking a little better.